Being a family caregiver for a spouse, parent, or loved one takes a lot of time, effort and work. It challenges you both intellectually and emotionally. You may have become a caregiver suddenly and without warning, or perhaps your role evolved slowly over time. Either way, you deserve reliable resources and helpful tips to take care of your care loved one and yourself.
There are many resources available to make sure that both you and your care recipient are living the best lives possible. Through these caregiver links, you will find a range of information to make your caregiving experience more successful.
For family members or others with Alzheimer’s disease (AD) at home
This guide is for people who care for family members or others with Alzheimer’s disease at home. Alzheimer’s is an illness that changes the brain. It causes people to lose the ability to remember, think, and use good judgment and to have trouble taking care of themselves. Over time, as the disease gets worse, they will need more help. The information in this guide comes from other caregivers and from medical research, such as that funded by the National Institute on Aging. The NIA is part of the National Institutes of Health, the nation’s medical research agency. The NIA leads the federal effort to find the cause of and treatment for Alzheimer’s disease.
“Pathways of Hope: Living Well with Cognitive Changes”
This book and DVD series shares the first hand stories of a dozen persons who noticed cognitive changes well before the age of 65 years. The insights and resources included in this 72-page book is a must read for anyone working with people, since one in three families have a loved one with Alzheimer’s. A scientist wrote that this “short book with its inviting photographs, inspiring stories and beautiful layout embodies the efforts of a group of individuals involved in an important revolutionary movement.” It shares important information and resources about early symptoms, exercise and physical capacity, nutrition, avoiding toxins, integrative medicine, and advocacy. For this easy to read, easy to give resource, order online at the University of Wisconsin Press. This book is also available through most book stores and online book dealers.
The “Consider the Conversation” series is remarkable, with two thought-provoking films that look at many of the issues that we will all face at the end-of-life. Produced by care industry veteran Michael Bernhagen and filmmaker Terry Kaldhusdal, they open the floodgates of thought and conversation on this most difficult and often taboo subject. Watch the trailer here.
Alzheimer’s and Dementia Alliance: The expert staff at ADAW understand that every person touched by Alzheimer’s or other dementia will need support to help them navigate the course of the disease. They can guide you through the complex maze of issues that can arise by offering personal consultations, education, access to resources and advocacy.
East Madison/Monona Coalition of the Aging: A nonprofit agency providing social services to help area seniors maintain their independence and life satisfaction. EMMCA provide programs and services for senior adults, assists senior adults and their families in accessing services, networks with agencies and organizations interested in senior issues and concerns.
At senior centers, individuals can interact with their peers, be part of decision-making processes, and fulfill their interests. This allows adults to continue to experience a sense of achievement and to be productive in their community, which is important throughout anyone’s life.
Colonial Club Senior Activity Center · 301 Blankenheim Ln, Sun Prairie · (608) 837-4611
Fitchburg Senior Center · 5510 E Lacy Rd, Fitchburg · (608) 270-4290
Madison Senior Center · 330 W Mifflin St, Madison · (608) 266-6581
McFarland Senior Center · 5915 Milwaukee St, McFarland · (608) 838-7117
Middleton Senior Center · 7448 Hubbard Ave, Middleton · (608) 831-2373
Monona Senior Center · 1011 Nichols Rd, Monona · (608) 222-3415
Oregon Area Senior Center · 219 Park St, Oregon · (608) 835-5801
Stoughton Area Senior Center · 248 W Main St, Stoughton · (608) 873-8585
West Madison Senior Center · 602 Sawyer Ter, Madison · (608) 238-0196
West Madison Senior Coalition · 517 N Segoe Rd Ste 309, Madison · (608) 238-7368
Verona Senior Center · 108 Paoli St, Verona · (608) 845-7471
Waunakee Senior Center · 333 S Madison St, Waunakee · (608) 849-8385
UW Health Geriatric Clinics · 2880 Univ Ave, Madison · (608) 263-7740
Madison VA Geriatrics · 2500 Overlook Terrace, Madison · (608) 280-7011
Area Agency on Aging · 2865 N Sherman Ave, Madison · (608) 261-9930
Jewish Social Services · 6434 Enterprise Ln, Madison · (608) 278-1808 ext 228
Ph: (608) 235-2800
Madison, WI Branch Office
5610 Medical Circle Suite 4
Madison, WI 53719
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